Comments on: ME/CFS Awareness Day – 12th May 2007 http://dizzysky.wordpress.com/2007/05/02/mecfs-awareness-day-12th-may-2007/ Blue Sky with a Twist of Dizzy Mon, 28 Apr 2008 10:37:33 +0000 http://wordpress.com/ hourly 1 By: Kathy Houghton http://dizzysky.wordpress.com/2007/05/02/mecfs-awareness-day-12th-may-2007/#comment-138 Kathy Houghton Fri, 11 May 2007 18:43:30 +0000 http://dizzysky.wordpress.com/2007/05/02/mecfs-awareness-day-12th-may-2007/#comment-138 The Thief of Many Lives The Reality of living with Chronic Fatigue Syndrome Until you read "The Thief of Many Lives" you too may have questioned the validity of Chronic Fatigue Syndrome as a real illness. It is VERY real, especially for us the sufferers and our caregivers. The credibility and validity of this disease has long been a most difficult message to convey to our Government, Physicians, Healthcare Professionals, friends, families and general public. What makes this even more challenging than how we might physically appear is the inappropriate name given to such a serious and debilitating disease. Consequently, one of the worse things someone can say to a person with CFS is how well we look on a particular day ... we must be feeling "better" ... "better" than what? Death? Unfortunately, CFS victims generally do not feel better than death ... warmed over or otherwise! Lengths of time go by, month, seasons, and then years when all of our reserve energy is used simply to eat and breathe and those are the "good" days. Unfortunately, not many see this as most people with CFS are left to suffer behind closed doors. Unexplainably, our cries for awareness, and validity continue to fall upon deaf ears. WAKE UP AMERICA ! CFS is at epidemic proportions destroying lives and affecting millions of people worldwide. May 12th is International CFS Awareness Day. Please make your voice be heard. Inform others about the tragic impact this illness is having on you, your loved one and our nation. BE AWARE OR BEWARE ... As you could be writing this letter from your bed next May 12th. Read The Thief of Many Lives here: http://kathy-mcspage.blogspot.com/ The Thief of Many Lives
The Reality of living with Chronic Fatigue Syndrome

Until you read “The Thief of Many Lives” you too may have questioned the validity of Chronic Fatigue Syndrome as a real illness. It is VERY real, especially for us the sufferers and our caregivers. The credibility and validity of this disease has long been a most difficult message to convey to our Government, Physicians, Healthcare Professionals, friends, families and general public.

What makes this even more challenging than how we might physically appear is the inappropriate name given to such a serious and debilitating disease. Consequently, one of the worse things someone can say to a person with CFS is how well we look on a particular day … we must be feeling “better” … “better” than what? Death? Unfortunately, CFS victims generally do not feel better than death … warmed over or otherwise!

Lengths of time go by, month, seasons, and then years when all of our reserve energy is used simply to eat and breathe and those are the “good” days. Unfortunately, not many see this as most people with CFS are left to suffer behind closed doors. Unexplainably, our cries for awareness, and validity continue to fall upon deaf ears. WAKE UP AMERICA !

CFS is at epidemic proportions destroying lives and affecting millions of people worldwide.

May 12th is International CFS Awareness Day. Please make your voice be heard. Inform others about the tragic impact this illness is having on you, your loved one and our nation.

BE AWARE OR BEWARE … As you could be writing this letter from your bed next May 12th.

Read The Thief of Many Lives here:
http://kathy-mcspage.blogspot.com/

]]> By: Von Jones http://dizzysky.wordpress.com/2007/05/02/mecfs-awareness-day-12th-may-2007/#comment-136 Von Jones Thu, 10 May 2007 18:45:35 +0000 http://dizzysky.wordpress.com/2007/05/02/mecfs-awareness-day-12th-may-2007/#comment-136 well done! I couldn't see where to contact you so writing here - hope this is right! There is also an ME awareness leaflet (large print so can be read without specs!) aimed at the general public called ME Awareness leaflet in Word Mk 4.doc downloadable from http://health.groups.yahoo.com/group/MEActionUK/files/ People have been distributing them at shops, docs and dentists waiting rooms, shops, workplaces, pubs clubs etc and at churches after prayers for ME awareness too. well done! I couldn’t see where to contact you so writing here – hope this is right!
There is also an ME awareness leaflet
(large print so can be read without specs!) aimed at the general public called ME Awareness leaflet in Word Mk 4.doc downloadable from
http://health.groups.yahoo.com/group/MEActionUK/files/

People have been distributing them at shops, docs and dentists waiting rooms, shops, workplaces, pubs clubs etc and at churches after prayers for ME awareness too.

]]> By: rachelcreative http://dizzysky.wordpress.com/2007/05/02/mecfs-awareness-day-12th-may-2007/#comment-107 rachelcreative Fri, 04 May 2007 13:17:35 +0000 http://dizzysky.wordpress.com/2007/05/02/mecfs-awareness-day-12th-may-2007/#comment-107 Leigh - yes no problem but might need to credit CFIDS and their information pack which kickstarted the list. http://www.cfids.org/advocacy/awareness-day04.pdf I've edited the post today to make that a bit clearer. And you might want to tidy it up a bit - I'm having a fogged-up week! :-) Leigh – yes no problem but might need to credit CFIDS and their information pack which kickstarted the list. http://www.cfids.org/advocacy/awareness-day04.pdf

I’ve edited the post today to make that a bit clearer. And you might want to tidy it up a bit – I’m having a fogged-up week! :-)

]]> By: Leigh Fenton http://dizzysky.wordpress.com/2007/05/02/mecfs-awareness-day-12th-may-2007/#comment-106 Leigh Fenton Fri, 04 May 2007 09:53:42 +0000 http://dizzysky.wordpress.com/2007/05/02/mecfs-awareness-day-12th-may-2007/#comment-106 Hi Rachel I think your fundraising ideas for M.E. Awareness Day are excellent! Would you be happy for me to forward your ideas on our e-mail noticeboard? Leigh Fenton Action for M.E. Hi Rachel

I think your fundraising ideas for M.E. Awareness Day are excellent! Would you be happy for me to forward your ideas on our e-mail noticeboard?

Leigh Fenton
Action for M.E.

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